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Asperger’s diagnosis as “Membership in the Club?”

In various groups, on the Internet, or in “Real life” there were probably still much länger-again, discussions, whether AS is a “fad” and who refer to themselves as Asperger-Autist duerfte… in the whole 5 years where I me now deal with this topic – andThere is already a difficult question when someone Asperger is Autist, where the syndrome have characteristics is defined, of which many (almost all?) at least some with him can recognize. The answer that makes the “sum” or the “exceptional accumulation” of the characteristics is theoretical. But if you can distinguish this?

There are certain generally accepted Diagnostician in university hospitals. Some want to be but not studied for various reasons, for example because they are afraid of stigma. Then there are some for which the entire process with its formalities, long waiting periods and large being is a heavy burden. This is understandable, imagine, she had toothache and would have to wait 6 months for an appointment and 150 km car drive

Still others have studied, perhaps even several times, were “not satisfied” with the result. They were told they had no Asperger‘s syndrome, although they assume itself. Often, the diagnosis be justified unconvincing and many also think that they have learned over time to compensate, so that you so fast not could say it them. So they feel that you had not enough dealt with them. In such cases, it is very difficult. Sometimes, even the Diagnostician can give no clear result.

This way is so long and not easy. Many are very insecure.

Because of this uncertainty, all discussion forums on the subject have the clear rule that one (especially someone whom one does not know!) may claim not by someone else, be suspected of having AS is incorrect. I find good and useful this rule.

When done there, there were almost always problems. “You have no diagnosis” even as the last argument in the argument was sometimes used. I find this rather unfair.

I felt such “allegations” even despite official diagnosis already exposed, because I the idea, the certain circles of the syndrome (reduced, disabled, persons) did not.

The Diagnostics are used to erhährten suspicion. You are not the permission to speak on the subject and also no “membership in the Club”.

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Posted by admin - May 25, 2011 at 11:55 pm

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Rain man

The film was once again as a repetition in the television last weekend. But actually, it was the first time that I’ve seen him. Therefore a par thoughts of me to…I would like to focus on the plot of the film not once again. Who doesn’t know it, that can read for example on Wikipedia.

More interesting, I find the many discussions that existed on this film, just among stakeholders that was often topic. There are long threads in discussion forums.

Many see something like the epitome of missverstandenem autism in the film. Many think they are not taken seriously with their autism (a generally lighter than shown in the film) of their environment or even professionals. The public would there shown with the phenomenon of autism as a whole equate and accept anyone who does not comply with this image not as autistic.

I think you should see that with more distance. Already at first time. The film is over 20 years old. During this time much has happened in research, society, and the identity of the persons concerned. I’m not sure whether the public really so generalized the show and takes for face value. No one would get the idea, that Star Trek has to do much with the work of NASA. On television, we know always the sun shines after a certain age everyone able should be but to look out the window and see that it is sometimes very different looks.

The film represents only a case by case basis and this only a part. There is no educational film and no documentation on the subject. You can not expect that. A film no one expected that he realistically and fully informing on human life, sexuality and HIV.

I think that the film has contributed to a distorted view of the topic. But you can not accuse that the creators.

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Diagnosis before long time

…, I would be interested how you deal with the topic, if your diagnosis long time (years) ago ist…fuer me has been the theme in the background. For some time I have read all, what I got on the subject in the finger and I have also taken part therapy.

Now I rarely go to the support group, a forum on the subject I read regularly, but much less than earlier write. Something really “new” there was actually no longer.

I have sometimes wondered whether the situation is different now than when I had never known. I find that very difficult to answer. I could not change a lot what I wished I used in my daily life. Nevertheless, a lot has changed and it is much better me than earlier I would have thought possible.

Now, I think it is better to deal with not too much with the topic, but “just to live”.

What do you, how are your experiences? What therapies, diagnosis and dealing with the topic brought you?

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Horizon career on graduating seniors.

Perhaps nothing feels more fulfilling to Stevens undergraduate students than commencement, a moment to celebrate that they “made it” – they, indeed, persevered to earn a degree from a premier university and are launching to the next phase of their lives.


Although their experiences and destinations are diverse, graduates of the Stevens Class of 2011 share a commonality at this important milestone in their student careers. The Stevens advantage continues to give graduates a remarkable return on investment.  An impressive 96% of last year’s graduating class accepted employment opportunities of their choice, and the Class of 2011 continues to experience higher placement rates than last year at this time, a stellar record, especially, in the constrained job market they face today.


The 2011 Commencement ceremonies mark the start of promising careers in the workforce and advanced degree programs for Stevens graduates.  They have accepted offers at top companies in industry and government.   Among the long list of employers are ExxonMobil, Goldman Sachs, MIT Lincoln Laboratory, DuPont, and the Department of Defense.  What’s more, those who sought medical, dental and other graduate schools will be attending programs at Columbia University, Georgetown University Medical School, University of Pennsylvania, and University of Medicine and Dentistry of New Jersey, to name a few.


While we would be delighted to highlight the accomplishments of each and every graduate, meet graduating seniors Veronica Smith, Rui Xiong, Ellyn Griggs, and Robert Bishop. Their stories represent the overall success enjoyed by this year’s graduating class.


Veronica Veronica Smith
Major: Biomedical Engineering
Employment: Johnson & Johnson


As a Stevens co-op student, Veronica joined the 40% of Stevens students who take part in this unique academically-based program. She alternated semesters in class with full-time work experience, and that’s where she was first introduced to Johnson & Johnson, the company she has chosen for full-time employment post graduation.  Graduating with a biomedical engineering degree as well as graduate certificates in project management and health care management, Veronica is on her way to an exciting career at Johnson & Johnson in the highly selective Global Operations Leadership Development (GOLD) program in which she’ll serve in three, eight-month management rotations. “It’s exciting, and I look forward to this new experience,” Veronica said. “I’ll be supervising at the Acuvue® contact lens plant.  It’ll be a challenge, and that’s exactly what I wanted and am prepared for.”


At Stevens, Veronica also seized the opportunity to participate in tissue engineering research under Dr. Hongjun Wang and was able to take part in a neuroscience summer research program at the Massachusetts Institute of Technology (MIT).  She was a member of Stevens’ track and field team as well as a peer mentor, an upper-class undergraduate student who assists new undergraduates in their academic transition into college.


Reflecting on her transformation at Stevens, Veronica noted how independent and focused she’s become.  “When I first came to Stevens, I thought I wanted to focus more on research and go to graduate school,” she said.  “And I got to try that here. I changed my direction, but it was great to be able to test my original interest right away.  I wouldn’t have found the path I’m on now had I not had the opportunity to explore my options before graduating. My friends who were at other universities didn’t have such opportunities. Because I did, I was able to actually create a more focused plan while I was still an undergraduate student.  I highly encourage students just beginning their journey here to take full advantage of all the ways Stevens allows students to discover their passions.”   


Rui Rui Xiong
Major: Business and Technology
Employment: Federal Reserve Bank, New York City


Rui is launching from Stevens with both a bachelor’s degree in business and technology and a master’s degree in global innovation management. He also earned graduate certificates in project management and technology management. Rui is happy to have accepted a fulltime post at the Federal Reserve Bank in New York City as a bank examiner and is excited that the role will allow him rotational stints in various areas of the company (for example, liquidity, management and financial analysis) to further diversify his experience there. He was first introduced to the Federal Reserve Bank through an internship at Stevens, and for two years he also took part in their College Federal Challenge, a team academic competition for undergraduate students. Among the topics he tackled was quantitative finance.     


Rui pursued many opportunities in- and outside of class to explore his interest in economics, business, finance, and monetary policy, a curiosity he said grew from following the financial crisis events of 2007.  Ample openings for student involvement and its proximity to Manhattan were significant factors in his choice to attend Stevens.


“I liked my program, and I was fortunate to have access to a wonderful group of peers and faculty,” Rui said.  “The size of Stevens is a great asset for students.  I developed close relationships with everyone, including faculty and administration. Here, you won’t have a class with someone once and then never see them again. My peers at other institutions certainly weren’t saying that about their experiences. And the classes at Stevens are diverse; that is very true. The global influence here is extremely beneficial.  Stevens really transformed my world view in many ways.”


Ellyn Ellyn Griggs
Major: Mechanical Engineering
Employment: L’Oreal


As a Stevens Scholar, Ellyn is graduating with a bachelor’s degree in mechanical engineering and a master’s degree in systems engineering.  In addition to summer research in nanotechnology at Stevens, her involvements outside the classroom are more than impressive. Ellyn’s activities include varsity field hockey (captain) as well as a stint on the track and field team her freshman year.  She participated in two paid summer internships at L’Oreal in the company’s Franklin, New Jersey manufacturing plant. Ellyn was one of only two juniors selected for the internship. She also served as a resident assistant, member of the leadership honor society Gear and Triangle, a student blogger for the Office of Undergraduate Admissions, treasurer of her sorority, secretary of the Greek honor society, club field hockey coach, and a peer mentor.


In a fulltime position at L’Oreal, Ellyn will enter her new career through the company’s Management Development Program, a rotational leadership program in which she’ll work two or three rotations at various locations and in different job functions to then take on a managerial position within the company. Ellyn looks forward to her first placement at L’Oreal’s manufacturing plant in Kentucky, where the majority of the company’s hair care and hair styling products are made.


It’s clear from her resume, Ellyn has lived the advice she gives to new students. “I would tell anyone entering Stevens that they can do anything here. Really, it’s such a benefit to get involved,” she said. “There is so much to do here, and you don’t need to be intimidated by all the options.  It’s all about time management.  Once you get that down, the sky’s the limit!”


Robert Robert Bishop
Major: Business and Technology
Employment: JPMorgan Chase


A business and technology major who minored in economics, Robert is graduating from Stevens with a fulltime position at JPMorgan Chase as an operations analyst, and he is looking forward to the challenge.  He said the main draw to his program of study at Stevens was his dream to someday work for a top company on Wall Street. Although he had some ambivalence about pursuing that passion, he’s grateful Stevens allowed him the opportunity to experience it first hand to see if it was good fit.  Indeed, it was.


Not only did he get hands-on experience through an internship with the company during the summer concluding his junior year at Stevens, but Robert was also involved in a major project born from the Stevens Entrepreneurship and Enterprise Development (SEED) program, which joins select students from the Stevens’ Schaefer School of Engineering and Howe School of Technology Management to develop market plans centered around Stevens startup companies. The goal is to cultivate tomorrow’s technology entrepreneurs through first-hand research and commercialization experience.


Like many of his peers, Robert leaves Stevens with appreciation for the diverse experiences available to students. “The opportunities available here really set Stevens apart from other schools,” Robert said.  “I was a varsity student athlete, had a competitive internship, handled a rigorous course load, and teamed up with peers, professors and business leaders to advance a new tool designed by a software startup company, ID8 Systems, within a new marketplace. And as if that wasn’t enough, I had the chance to do more.”  At Stevens, Robert also served as a Resident Assistant and captain of the varsity wrestling team, played club men’s lacrosse, was a peer mentor and Orientation Leader, and enjoyed being heavily involved in a fraternity.


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Face cards communication as iPhone app: interview with Lisa Domican

Lisa Domican created an iPhone application to facilitate the communication of their daughter grace. The living in Ireland mother of two autistic children the Dublin students and iPhone Developer Steven Troughton-Smith addressed to, whether he would program the iPhone app. He promised to immediately. Meanwhile, Summit Award mobile won the iPhone app “Grace” the Irish Web Award 2010 and the world. Lisa Domican in an interview with autism culture.


How did you up with the idea for this iPhone app1?
I saw an ad for iPhone on the long side of a bus – for me it looked like a face book. Grace used an actual book with small images for six years, before I developed the app.


What does the iPhone app?
You depicts a book pages that have all of the images takes an autistic person to communicate. Colors, numbers, shapes, food and drink, things to play.
The app is each of these pages in a folder, you can then open and can select the image that you want. Then below, the small image appears on the screen. Put together the whole images and make a set.


How is your daughter using the iPhone app can manage?
The book with the images worked well at home or at school, but it was too large to carry it with shopping, swim, or went to McDonalds. If she so wanted to have something that could not reach them, she had no way to ask. She stomped on then maybe with the feet, or cried or tried to reach for things and I did not know what she really wanted.


She experienced much less frustration and tantrums, because she can always tell what she wants, even in a new situation such as in a supermarket. If we are looking for something, what can not explain it, we would like to take the iPhone and take a picture, or we googled with the iPhone on the Internet, save the image, and show how you can ask her then.


Their sound is uttered has improved by practice. It is advanced by the use of words such as “Twink” to say “I will drink Apple juice”, and they photographed and Google their own images.


Grace can learn nothing new if it has not the image to remind them. Without image she calls a “Frr” the bath mat. Called also the hairbrush, the mirror their toothbrush “Frr” – this is not so good.


With a photo of the brush, it says “Bür” – the image is their memory. One day she will be able to say the whole word and to remember, because she can remind of the image.


You have deliberately not exhausted the technical possibilities of the iPhone and resident on a voice output. How did it come to this decision?


The social basis ensures the communication through the exchange of cards – a user has to find an audience with him sharing the images set and these forms each word and snezka. When Gracie shows me the image of the mirror, I say “Sss…” and often, she will then say “Spiegaa”.


In this way, we practice slowly and improve their vocalizations. Gracie has learned to speak at the age of six. Their mouth muscles are developed as weak. I form the words and einsage, I can help her to develop her voice so that everyone can understand what she says.


Speech synthesis devices have two problems.

The autistic person not to learn the social basis. It is perhaps alone and pushes the button for “I want a biscuit”, but it is not going to find the person that can give you a cookie. This is a particular problem in autism. People with down’s syndrome or other mental impairments are usually better social skills. They know that they “Hello” to say, if they meet someone and they will also adopt. The autistic person must be remembered to do that, because it is not of course worthwhile social contact.
If you make sure that they always have to find you to share the images with you, you can reward them with, what they are asking. Then find it socially rewarding you and perhaps even begin to more social contact me to include you. This is very important for parents who may never had this type of interaction with their child.The sentence must be shaped and eingesagt.
When Gracie comes with the sentence “I want cake” to me, I will it read it and give you the opportunity to say every word. You get a small piece of cake.
If it shows me the set – “I want cake” – and then speaks with me: “I marvels” Cake! “, I would like to give her a bigger piece of cake!” She know that that was even better than to point only to the images.If it comes without their pictures to me and says “I want cake”, then I would give the whole cake her. Then, she know that saying is a really good thing.
You can only do that if you interact, are waiting for, and each word einsagst the child. An electronic voice cannot.

What are your further plans for the grace app?
We want to publish a free version of the app, to help all autistic children to say when something hurts them. It is difficult to teach the autistic children, even if they can speak. I think it would be great if we could allow each.


I would like a bit more travel to show off the app to help people, teach autistic children to communicate and express themselves independently.


I would join me like with projects, which translate the basic version of the grace app in other languages, so that more people outside the English-speaking world can benefit from them. Particularly interested in the opportunity to develop an Arabic version of the app by the great contacts which I have linked to the World Summit Awards.


I am especially the UN and the World Summit Award for mobile content grateful that they put me in contact with so many other talented Entwickler_innen, the jury, the Moderator_innen and the businessmen who were so supportive and encouraging. I would like to involve also the developer of Steven Troughton-Smith – who has taken over the entire programming and has improved the app until she, grace used, fitted to the type.


Thank you for the interview.


In this video, you will see how to use the iPhone app:


The iPhone app “Grace” runs on the iPhone, iPod touch and the iPad. It is available on the Apple iTunes store and costs 30 €. So far, there is the text under the images only in English. I have with Lisa Domican relating to translate the words into German. It will take but expected to take some time until the app in other languages than English. We will report then of course here in the blog.


Links to the topic


Footnotes
1 An iPhone application is a program that runs on an iPhone. An iPhone is a mobile phone from Apple, which contains also multimedia and computer functions.


Image source: www.maxwellphotography.ie


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Funds for medical research?

Medizinische Autismus-Forschung

This column was originally posted on the ANI-L mailing list, after I had somewhere else read a post, in which someone also complained that the national institutes of health (NIH) provide more funding for research into cystic fibrosis as for autism, although autism and cystic fibrosis occur with approximately same frequency in the population. The post further compared the frequency of occurrence and the amount of resources provided by the NIH for children’s cancer, Huntington Chorea and muscular dystrophy. He called on the people to contact their Senator_innen and members and to demand an explanation from them why cystic fibrosis research gets four times as many resources such as the autism research.

I don’t think that the answer will be very difficult: cystic fibrosis, cancer, Huntington Chorea and muscular dystrophy are diseases! You make sick people. They cause incredible amounts of suffering and misery, and they kill people. Of course, the NIH encourages research on such suffering!

Autism is not a disease. Autism not sickens people and not kill them. There are different views about how much suffering and misery caused autism. Some people suffer from very, while for others the suffering mainly by other people is verurscht, not of autism.

But even at their worst moments, the people affected most directly by autism – report those who are autistic – tends to be a whole lot of less suffering as a result of their disposition than people with cystic fibrosis as a result of your report. Perhaps the Cystic Fibrosis research receives more money than the autism research, because cystic fibrosis is a fatal disease that makes people sick and miserable and then kills her!

Also I don’t like the idea of a whole lot of medical research on autism from the outset no matter whether the resources of the NIH come or not. Medical research on specific investments is generally focused on the objective of the prevention, alleviation or treatment of investments. These are completely installed objectives for cystic fibrosis, cancer, Huntington Chorea and muscular dystrophy. I’m sure that pretty much anyone who has cystic fibrosis, cancer, Huntington’s disease or muscle wasting, like had a cure, so that they no longer had the diseases. In autism, this is not the case. What are the goals of a medical research on autism? “Heal me” – to get me better in this world to fit, by you to feel my way, to perceive, to think, feel and have relations changed until I no longer the same person am? The strangeness of my autistic Freund_innen repair, so that they no longer were the same people I know and that mean something to me and that I share my life? To prevent more people like me at all to be born? A world to create, in which there are no people like me? These are the objectives for which I should require an increase of in resources?

Oh yes, I was again insensitive towards the parents. What is with the suffering and misery that they have this, having an autistic child? Now, I know for sure that there are at least some parents who feel not unhappy and miserable, because they have autistic children, and who do not want that their children be – cured even though they will move mountains when it comes to get appropriate education and support for their children. I have however never heard of a single parent of a child with cystic fibrosis or cancer, which would be satisfied to have a dead child, as long as the child gets a good education and support.

I had a life-threatening blood disorder when I was younger. For one and a half years I had to limit activities that previously were part of my own “normal” life (not only activities, someone else considered part of the concept of “normal life”). I have physical symptoms that were inherently stressful and scary, and medical measures, which were uncomfortable and painful. I experienced the awareness of the fact that the death for me was a very much more likely possibility was that for most people of my age. And I have spent much time in the waiting room of children’s Hematology and-onkologie to sit, it was together with emaciated and bald children, who were both younger and sicker than I.

My life experiences include it also, watch as the best friend of my brother not to bändigenden age from one to a thoughtful and lively young man grew – and then with nineteen years died of cancer. And the College complete, together with a young woman who, although she was getting sicker and weaker, it nevertheless zustandbrachte, obtaining her college degree and her diploma to get – and then died of cystic fibrosis, less than three weeks after the conclusion.

I wanted a cure for them, and they wanted a cure for me. I am glad that there was enough research to my illness, so my Aerzt_innen could bring me into a stable remission. I want it here is more research, more knowledge, more and better treatments so that people like Ken and Pamela can also survive. So that more children like the ones that I was sitting in waiting rooms, can survive, and so it not so bad must go them through the treatment during their course. So children faster and less uncomfortable can be treated as I as I. This is where include funds for medical research.

Means no give, I am of the opinion, it should be funds or development of services for autism? That very fine is autistic people, if we are left to cope with our affairs? No. I see only medical research not as attached focus of financial resources and program development.

My life is definitely not “very good”, as it is. I had no job for almost two years and in my entire life I have earned (barely) enough only for a period of four years, to entertain myself, and it ended disastrously almost seven years ago. Helps medical research in this situation? No: I need educational and professional support and a job where I can be sure me that to be employed does not mean, to be exploited and abused. Basic skills of self-preservation, financial organization, time management missing me. Helps medical research in this situation? No: I need a training in certain skills and support by my environment. These are not the things which financed the NIH or that they should fund.

Give out the money for autism for special education, inclusion in the profession, supported housing and a barrier-free community. But give my share of the funds for medical research in cystic fibrosis and cancer. Autism like much of his – a way to be a way to have relationships, a sense of self, sharing a culture, a starch, a challenge, a shield or a tool, a talent or an obstacle to many people. But one thing is not Autism: a disease.

This article by Jim Sinclair was Vol in the journal of Autism Network International “Our Voice”, 1995. 3, No. 1 published.

Translated by Colin Müller.

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Posted by admin - May 24, 2011 at 11:44 pm

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To the open letter to Nicole Schuster or cabbage food does need a diagnosis?

Via Twitter, I became aware on an open letter to Nicole Schuster. Is “Querdenkender”, “Hawkeye”, “fotobus” and now more Unterzeichner_innen Nicole Shoemaker criticize decision to refer to no more than Autistin.


Nicole Schuster was strong in the light of the public “as Autistin”. She wrote an autobiography about himself as Autistin, “A good day is a day with Savoy cabbage”, as well as several books on autism, had their everyday life for a documentary film and gave interviews in talk shows and magazines. There may be, is or was a figure of identification or even a role model for other Autist_innen. And now? No longer autistic? You doubt must now also on the own self image?


Nicole writes on their website:



As a Autistin call, and I feel no longer. Diagnostics is a help, a piece to cope with his situation. You should never be perceived as immutable destiny.


One thing is important to tell me:
It is only Nicole Shoemaker matter, as it is defined. No one has a right that celebrities behave as er_sie wants that.


I personally find a reasonable knowledge Nicoles view to Diagnostics.


Now to the open letter. The Schreiber_innen of the open letter accused summarized the following Nicole Schuster:


1. By its statement, the impression would be, autism is curable or can be overcome. Only:, Nicole Schuster nowhere writes (to my knowledge), it was cured or had overcome their autism. It writes nothing about whether she would or not get still a diagnosis of autism. She only writes the identification with autism earlier has helped you, that now but no longer does.


2. His life as an Autist to master is not the one that gave his unalterable fate!
This has not written Nicole of I think. She writes that a diagnosis should be perceived not as immutable destiny. Write-ups from the outside are diagnostic. They can be seen as suitable or unsuitable, and of course you can change its view to.


And of course you can master his life only as the person who is – whether (at times) a label helps one or not, certainly depends on many factors. And, autistic or not, over the years to develop his personality and his ideas further and changed this may also be its self-definition or identity.


I have met have more than one person that is earlier than autistic defined (and sometimes a diagnosis), but no longer do this today. I myself thought again, when I had read some article on Asperger’s syndrome, could fit the descriptions on me, but I would define me as autistic. Some people got Asperger ‘s/autism diagnosis, as they were in a crisis type anyway – such as unemployment. In this crisis was the diagnosis to the stop and the own otherness to the supposed cause of the crisis – and not about the labour market. After some time was them that the situation was complex and not only on personal characteristics attributed their problems had to then.


3. If the people who handle it well with your autism deny or push into the background is a false image of autism!
I am afraid there is no real (only and objectively) picture of autism. And certainly, the image is not authentic, if a person who feels no (longer) autism, still presents itself as Autistin.


I would like to give to keep in mind one thing: the Erstunterzeichner_innen of the open letter signed anonymously. Geoutete 24 hours a day, seven days a week as everywhere (because media known) Autistin running around and to represent “the Autism”, that is a decision you can make for themselves. But not for others.


Bottom line: You may eat cabbage every day without feeling as Autist_in. Just as we should, whether Autist_in or non-Autist_in, his eating habits change, if one is after.


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Degree of severe disability in Autism/Asperger’s syndrome (change 1.1.2011)

SchwerbehindertenausweisTo the 1. 1st 2011, an amendment to the “supply medical regulation” came into force. It is set among other things, which degree of severe disability awarded persons within the autism spectrum.

The degree of severe disability at autism and Asperger’s Syndrome was set previously as follows:

light forms (for example, type Asperger’s)

The new version explicitly couples a disability on an Participation-effect. The degree of severe disability in Autism/Asperger’s syndrome is set there as follows:

Profound developmental disorders (especially primitive autism, atypical autism, Asperger’s syndrome)

With profound developmental disorders

without social difficulties is the SOS 10-20, with light social difficulties is the SOS 30-40, with medium-sized social difficulties is the SOS 50-70, with serious social difficulties is the SOS 80-100.

The criteria of the definitions of the ICD-10-GM version 2010 must be met.

If you have the capacity for integration in areas of life (such as for example rule kindergarten, rule school, general labour market, public life, domestic life) without special promotion or support (for example by inclusion help) or require the affected of more than the amount corresponding to the respective age supervision, social difficulties are in particular. Medium-sized social difficulties are in particular where the integration in areas without full support (for example, an integration helper as an aid to integration) is possible. Serious social difficulties lie in particular where the integration in areas of life with comprehensive support is not possible.

Source (PDF)

In some Asperger’s forums, the howling and Zähneklappern began to now. I know that I am now doesn’t have any friends that, but: I do not understand why.

I’ll try to explain my view of the change.

The “degree of disability” is defined in the regulation as “the measure of the impact of participation in the life of the community” (source). In other words: even so far was the recognition of a level of disability and the exhibition of disabled ID on an actual impairment. Autism or autism spectrum disorder diagnosis has never been sufficient; When applying for a disabled, you must describe as exactly how it is affected. It depends then, which shall be degrees of severe disability.

Writing in the application such as: “I train driving, can not alone because…” I can not go to the doctor, because… I need help with… “.” With a diagnosis of autism, which can be very different. And who has written so far in the request: “I have a diagnosis of Asperger’s, no problems, am but sooo disabled in everyday life, please send the Passport to the below address.”, which was thus probably not too successful.

The social model of disability equates disability with medical diagnoses, but does it show primarily socially constructed barriers. In other words: an autistic person can be, not hindered heavily in their lives another with the same strengths and weaknesses because she lives in a different situation. The social model of disability is used not only by scientists of different fields, but also by the WHO on its classification regulation refers.

First of all is the seat only to employers, benefit carriers, authorities and so on as a severely disabled person to identify (VDK).

In some specific situations, the seat can benefit:

People with seat have a tax (a tax disadvantage settlement).People with seat get additional holidays or as from’normal a reduction in benefits. people with seat may be terminated only with the prior consent of the integration Office.Under certain circumstances people with seat for the traveling between work and home can claim the actual costs.Disabled people can get a tax benefit at the cost of a home help.People with seat or their Ehegatt_innen can get a tax reduction in institutional care.When children attend a private school with seat solely because of their disability need (because there is no suitable public school), the parents can get a tax benefit provided that the fees exceed the reasonable burden.When adult children (I know, sounds weird) due to a disability are unable, to maintain the parents can continue to get the children (until the child 25 and possibly also).In some swimming pools and similar people seat will receive a discount. This scheme is at the discretion of the institution and is not governed by law.

That may sound much, it looks but that it is apparent that there are in particular tax reductions. Of these, only persons who are employed and are with their income over the reason relief benefit. Only people in the employee relationship – and perhaps not even that benefit also from the special protection against dismissal: statistics of the Agency for work point out that the risk of becoming unemployed is higher than average for people with disabilities despite protection from dismissal (see also Niehaus 1997). There are other rights such as the free ride public transportation or parking in handicapped parking only with certain forehead (e.g. G for gehbehindert, AG for exceptionally gehbehindert).

Many of those, whose outcry is heard just in Asperger’s forums, benefit from the above advantages of especially seriously disabled ID in any way. Although they emphasize how bad it is (what I think and regret), they call for no concrete support, but – the seat. If anything, this is better? What the forums Schreiber_innen really want is a recognition of their suffering. And so I also understand that, so I also think that the application for a disabled ID is the wrong way to deal with. In some forums, it sounds almost like a competition: since Asperger’s diagnosis are easy to get, was the question, who moved to the level of the disabled and the forehead as very “concerned” on the seat. Besides the new regime doesn’t mean Yes, that more will be issued as of now no Schwerbehindertenausweise. You rather responded that in recent years people have Asperger’s diagnosis who were 20 years ago as a “normal”.

I see a big problem in the sentence: “Serious social difficulties in particular occurs when the integration in areas of life with comprehensive support is not possible.” There are no “integration background” people; Integration may require no adjustment to the standard. The Association Autism Germany e.V. criticized this sentence and refers to the paradigm of inclusion.

On the whole, I would say that there is much more important problems than the “degree of severe disability” for autistic people and their parents. Its importance is overestimated by most.

(via beingapart)

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